The governance of biobanks in the digital society
- ISBN: 9788410857032
- Editorial: Editorial Aranzadi
- Fecha de la edición: 2026
- Lugar de la edición: Pamplona. España
- Colección: Estudios
- Encuadernación: Rústica
- Medidas: 23 cm
- Nº Pág.: 199
- Idiomas: Inglés
The Governance of Biobanks in the Digital Society" explores the evolving role of biobanks within data-driven biomedical research, spotlighting the ethical, legal, and societal challenges. The book conceptualizes a model for biobank governance, emphasizing transparency, data protection, and public participation. Bridging gaps between existing regulations and ethical guidelines, it proposes solutions to unsolved bioethical issues by redefining governance from a participant-data perspective.
Rooted in bioethical principles, this framework aims at effective integration with digital innovations while safeguarding constitutional values and public trust..

